Charity faces closure without help

By Sara Bryce

Thursday, February 28, 2013

 

AN ISLE of Wight charity faces closure after 44 years, unless it can find a replacement volunteer secretary.

The Isle of Wight Association for Spina Bifida and Hydrocephalus supports nearly 30 Islanders with disabilities as a result of the conditions, but will not be able to continue if they can't replace Derek Sprake, who after becoming unwell is stepping down after 44 years to focus on his recovery.

Chairman of the charity Sylvia Griffiths said: "I think personally, if we can't find a secretary, we will have to close.

"We provide lightweight wheelchairs and maintain them, we pay for hospital visits as many of them have to travel to the mainland, we give grants and help independent living, and I don't think they would get that help anywhere else if we have to close down."

The charity, which has 12 volunteers, also has a fully furnished holiday chalet with disabled access in Freshwater, which will have to be sold if the charity is forced to fold.

Mrs Griffiths said: "The cottage is in a beautiful spot, and benefits other disabled families too. We only charge a very small cost and our own members can use it for free, but that would have to be put on the market."

Spina bifida is a fault in the development of the spinal cord and surrounding bones and can leave sufferers with physical disabilities, and hydrocephalus, which often occurs at the same time, is excessive water on the brain which can lead to brain damage.

For more information and to contact the charity, call Sylvia on 863658.

Reporter: sarab@iwcpmail.co.uk

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by Mike Crowe

1st March 2013, at 08:13:39

Can this be a warning to all clubs, societies and associations that a change of committee every so often is essential. Just because someone has been in office from the year dot it doesn't mean they have to stay there. A committee member or even a whole committee is limited to new ideas which are essential to make said organizations to survive. New committee members new ideas, they might not be their own they have made up, but brought in from being on another committee.

Another very bad mistake is for one willing member to take on two or three positions. There was an association where the founder was also many other things on the committee, he suddenly dropped dead. He was the driving force. "The association will collapse!!" An urgent meeting of a few saved it by splitting his work between FOUR people.

Good luck to this organization.

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by Mrs James

28th February 2013, at 17:16:21

This all seems a bit drastic, surely someone can take over as Sec. how hard have they tried to find someon , is there a FB Page , is there a publicity push to find one or more people to do this job, as it could be a shared post and someone could do it , family or friends of members etc. put a call out via Vectis Radio, I know Ian Mac would want to help find someone, so dont just give up, stand up and make everyone aware... I would gladly create a FB Page for them if need be...
Good Luck...

Any views or opinions presented in the comments above are solely those of the author and do not represent those of the Isle of Wight County Press.

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